Correlation Between Autism Distressed Behaviour and Quality of Life Among Parents of Autistic Children
Abstract
Autism Spectrum Disorder (ASD) is a neurodevelopmental disease that impacts children's communication, behavior, and sensory responses. The existing research has explored many aspects of ASD, that are under addressed such as emotional and practical impact on parental life. This study focuses on understanding the distressed behaviours of autistic children and their influence upon the quality of life (QoL) of their parents. The study included 40 parents of autistic children from the Sarthy Rehabilitation Foundation in Jodhpur, Rajasthan. the descriptive design and purposive sampling method was used for the study. Standardized tools, including Autism Distressed Behaviour Scale and a Quality-of-Life Scale, were used to collect data. The findings highlighted frequent occurrences of emotional outbursts, sensory challenges, and behavioural issues in children, which were closely linked to reduced QoL among parents. A modest but negative connection was found between the severity of child distress and parental quality of life. However, parents who adhered to organized routines, sought psychological treatment, and maintained social relationships reported improved coping. The study emphasizes the need of complete support services, such as counseling, financial help, and parent-focused training, in improving the well-being of families coping with ASD.